Write to your MP about the underfunding of Brain Tumour Research using our template below.  More details in my blog below.  See our downloads page for all our available documents.

Post Election - May 2010 - Letter to MP.doc Post Election - May 2010 - Letter to MP.doc
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The downloadable report below shows the inequality of funding of Brain Tumour Research.  Please feel free to use it when you write to your MP.

 

Scalby School year 11 immersion day.

December 7, 2011
Scalby School year 11s held an immersion day at the Rugby Club in Scarborough in aid of Ellie's Fund. They organised and ran it themselves and raised £460!  The news story read:

STUDENTS from Scalby School indulged in a plethora of fun activities in memory of a former classmate.

The Year 11 pupils took part in ELLIEFEST at Scarborough Rugby Club, to raise £460 for Ellie’s Fund, set up following the death of 14-year-old Ellie Othick-Bowmaker from a brain tumour last year.

The day featured a host of events including rugby coaching, Zumba, beauty treatments, bands, dancing, a prom dress viewing and even sumo wrestling.

Student Niikan Tehrani said: “I enjoyed the event because it was great to spend time with our year group doing fun activities to raise money for a good cause.

“I hope that we do this again in future because days like these are what you will remember when you look back at school.”

 

Felloe pupil Ayse Aydemir added: “I really had a great time because all the activities were well organised and not the kind of thing you do every day.

“It was really good to know that while we were having fun all the money was going to such an important cause.”



 

UPM Raflatac - donated almost £5000 to Ellie's Fund at the end of last year....

December 7, 2011

UPM Raflatac shapes up to donate EUR 50 000 to charity

 

(UPM Raflatac, Tampere, 19 November 2010) – UPM Raflatac is donating 50,000 euros through a global exercise campaign to the well-being of children and youths. The biggest individual sums will be donated to the Candlelighters association (6,000 euros) and Ellie’s Fund (5,000 euros) in Scarborough, UK, and the association ELER (5,000 euros) in Nancy, France. Globally donations are made in 13 countries.

 

Candlelighters is a childhood cancer charity and Ellie's Fund raises money for research into childhood brain tumours. The association ELER helps children in an intensive care unit.

 

The Every Body Counts exercise campaign inspired over 1,300 employees, over half of UPM Raflatac personnel, worldwide to take regular exercises to earn points for their teams. The goals of the two-month campaign were a healthy lifestyle, personal wellness and enhanced team spirit.

 

From 167 teams, the three best globally and two best locally were able to donate a sum to registered organizations of their choice. Where possible, they followed guidelines that the organizations should be local and support children's and youths’ exercise and wellness

 

"The Everybody Counts programme has been a great success. Over 1,300 participants exercised for an amazing total of over 40,000 hours. In addition to improving personal fitness the aim was to build team spirit and well-being at the workplace. And of course, one of the main sources of inspiration for all the participants was the possibility to help children and youth in need", says Jussi Vanhanen, President, UPM Raflatac.

 

 

For further information, please contact:

 

Ms Elisa Nilsson, Vice President, Communications, UPM Raflatac, tel. +358 40 500 3150

 

About UPM Raflatac

 

UPM Raflatac, part of UPM’s Engineered Materials business group, is one of the world’s leading suppliers of self-adhesive label materials and the world’s number one producer of HF and UHF radio frequency identification (RFID) tags and inlays. UPM Raflatac has a global service network consisting of 13 factories on five continents and a broad network of sales offices and slitting and distribution terminals worldwide. UPM Raflatac employs 2,600 people and made sales of approximately EUR 0.95 billion (USD 1.3 billion) in 2009. Further information is available at www.upmraflatac.com

In March this year I made a video with - and for - Raflatac. It is now available on YouTube - here is the link: http://www.youtube.com/watch?v=xP4GEo7FtYU&feature=youtu.be



The photo is me with two of the winning teams - both of whom chose to support Ellie's Fund.

 

Time for a catch up.

November 19, 2011
It's been a while since I've had time to write this blog - there have been some personal things going on for our family and I haven't been too well since the end of September.

I'm currently trying to update the whole website - we have some new events planned over the next year (yes - that far ahead!) so please do watch the events page which will be updated as soon as I have confirmed details for all of our events.

How your money helps - have you looked at this page yet? I've updated it today. I can't believe that we've been sending grants out for less than a year and that we have sent cheques to 12 families already - and all but one of those children has a brain tumour! I am also told to expect at least one more referral, this coming week.

E-petition - http://epetitions.direct.gov.uk/petitions/17419 Now - I'd like to ask you for your help - please will you all sign this e-petition. It needs 100 000 signatures, and we may have the opportunity of an increase in funding being debated in the House of Commons. Maybe, just maybe, the world is about to hear & see that brain tumours are devastating more families then any other types of tumour - and you can help that to happen.... Please, please share this link, and ask your family and friends to sign too.
http://epetitions.direct.gov.uk/petitions/17419

Calendars. We only have a few calendars left now - people are loving them, and seeing them as the perfect stocking filler for Christmas. If you would like one, please go to our shop page - www.elliesfund.com/shop.php - and I'll get one out to you double quick!
To everyone who has helped us to sell almost 2000 calendars - and almost reach our target of £12 500 for the Leeds brain tumour research lab - THANK YOU. 

I hope I'll be back soon as there's some exciting stuff to tell you about some of our fundraisers and their events.

Bye for now.

 

A calendar 'taster'

September 14, 2011


Here you go - a taste of the calendar. Vicky and I are Misses January! As you can see, very tastefully done - and all for an excellent cause.
More details about the calendar are in the post below and to see the rest of the photos - well, you'll just have to buy one!! (Go to our shop page www.elliesfund.com/shop
 

Invitation.

September 12, 2011

We would like to invite you to join us with our launch of ‘Raise Your Hats for Research 2012’

Brain tumour research is desperately underfunded – for every £100 raised for research into cancer, only 70p is invested into brain tumour causes and cures. It is imperative therefore, to progress brain tumour research in the UK, that funds are generated through community, corporate and commercial activity to ensure the handful of brain tumour research centres that exist across the UK can carry on the work they do to make a difference to the patients of the future.

 

To enable the recently launched Translational Neuro-oncology Group at LIMM (Leeds Institute for Molecular Medicine), based at St James Hospital in Leeds, to not only continue but to grow and develop a group of ladies who have all been affected by brain tumours in some way decided to come together to produce a tasteful semi nude calendar with little more than hats for cover.

 

The knowledge that a semi nude calendar of ladies affected by cancer was not a ground breaking concept did not deter Carol Robertson of Brain Tumour Research and Support across Yorkshire and Tina Boden, Trustee of Ellie's Fund – Brain Tumour Trust, from developing the idea for ‘Raise Your Hats for Research 2012’. Whilst asking ladies from across the Yorkshire and Humber region to get involved it soon became very apparent that 2012 could end up having twice as many months as any other year for Millenniums to come. Suddenly 34 ladies all wanted to come together to ensure this calendar was a success and would generate significant funds for the Leeds Lab that they now see as their own.

 

Get Ahead Hats from Snainton were kind enough to lend the ladies some of the most beautiful hats around and a fantastic day was had by all at the photo shoot at the home of Barry Hickling who most generously allowed the ladies and their support team to take over his residence and gardens for the day.

 
The Raise Your Hats for Research 2012 Family Garden Party was held yesterday. It was full of entertainment for both children and adults alike and included an introduction from Carol and Tina about the marvellous work that all the ladies did to produce this great fundraising calendar. We invited people from allsorts of places that wanted to know more about how they can help to raise brain tumour awareness. Dr Sean Lawler (lead scientist at the lab) was also at the event to chat about the importance of raising funds for research at the Leeds Lab.
 
We would really like you to help us support the Research Laboratory - and to 'Raise Your Hats for Research'
- calendars are £10.00 each and are available to buy now through this link    http://www.justgiving.com/calendarsales - or from our shop page - or from Carol in Leeds, Tina or Heather in Scarborough.

If you would like more information please email
info@elliesfund.com and we will be happy to help.
 

So much to do and say- but so little time!

September 6, 2011
I'm going to start off with something that's important to me - but also important to all of you; for it's about Ellie, and without her I wouldn't be writing this and you wouldn't be reading it.

Ellie should be celebrating her 16th birthday this Thursday. Unfortunately it can't be - so I am inviting all of you to join our family - in your own home - in lighting a candle for her. 'Just because'. And if you make a wish - make it that a cure or at least an effective treatment be found for brain tumours - and soon - please. Thank you.

A quick charity update for you now; there are several new events on the events page again. Please take a look and if you can't attend, maybe you can tell others about them - you never know who might be interested but just doesn't know about us yet.

The fundraising total now stands at almost £48 000 - and we are supporting 8 children from across Yorkshire. 7 of them have a brain tumour and unfortunately 4 of them are already terminally ill.

I've just asked Dr Sean Lawler if there is another piece of equipment that he needs at the moment (for the brain tumour research lab in Leeds) and I'd like for Ellie's Fund to fund something later this year if we can...

Watch this space!

Right - very short and sweet; we have 3 events coming up this weekend and one the weekend after - so I need to go and do some more preparation.

Bye for now.

Don't forget Ellie's candle.

Heather
 

How we are helping:

June 24, 2011
There will be a new page on the site shortly, but for now I wanted you all to know how the money that YOU are donating is helping the children that we set out to help. As always: THANK YOU.

Briefly; Ellie’s Fund have so far raised over £43 000 (since March 2010). From this we have given £12 000 to the last charity that Ellie chose to support. Since we became registered in our own right, last September, we have donated £6500 to the new brain tumour research laboratory that opened in Leeds in February, just a few days before Ellie’s first anniversary. The money was used to buy a NanoVue Spectrophotometer – a piece of equipment that I the lead scientist, Dr Sean Lawler, tells me will be useful to him on a daily basis. The equipment is being dedicated to Ellie.
 
We are also currently helping 5 families who have a child going through treatment.

For one family ‘help’ meant that the money - £500 for 6 months – paid for their dog to be kennelled whilst the (single) mum was in hospital in Leeds with her child.

Dylane's mum has given me permission to tell you the following:
Dylane, aged 4, was diagnosed with a brain tumour at the end of 2010. She’s undergone chemotherapy and radiotherapy, and operations that left her unable to walk or talk. Dylane is very determined though, and just 6 months later she is back at school with her friends, albeit with some health problems left by the tumour and treatments. Her mum wanted her to have a special 5th birthday party. Ellie’s Fund were delighted to be able to help.
Dylane’s mum says: ‘
I have just received your cheque in the post and I am
overwhelmed.  I can't believe the generosity of your
charity.  I'm shaking with excitement about how the party can pan
out.  Please pass on my thanks to the members of your charity and all
those who work tirelessly for such an amazing cause.  It makes a huge
difference to people like us who are currently going through this
situation.’


The third family are using the money towards bills whilst they cannot work as they are at the hospital with their child.

A 13 year old is fulfilling dreams of flying lessons; unfortunately now whilst on palliative care...

And finally (for now) 3 year old Ebonie just loves playing games on a borrowed iPad. The £500 we have sent will buy her one of her own for her birthday, which will be spent in hospital.

Please don't stop fundraising. We can't do it without you...

Have you seen the events page recently? It's been updated, and it looks as though there could be a lot of FUN to be had whilst helping these children!

Bye for now,

Heather
 

A new start:

May 9, 2011
I am going to the hospital/ward where Ellie had her operations tomorrow, for the first time since she died. My stomach is churning just thinking about it. BUT, this is for a really good cause; it's to find out how we can make sure that the paediatric oncology patients that are treated there get information about Ellie's Fund.

So it's time for me to begin a new relationship with Leeds' General Infirmary. And this time I hope, a more positive one.This time I will be giving something to the hospital and it's patients; instead of having something taken away from me....

Good night.
 

'Ellie's Year' for Ellie's Fund.

April 24, 2011
Two friends who have heard all about Ellie and Ellie's Fund got together one night over a drink or two and came up with an amazing idea - 12 months of fund raising, to raise £12 000 for Ellie's Fund, ending in 2012. They aim to finish with a bang - completing the London Marathon.
Their year kicks off officially today, even though a couple of events have already started; including a sponsored week of NO TV, video games, computer etc for Sarah's son Jack, and a 24 hour fast for Louise's cousin, also called Jack.

Their fund raising page is www.charitygiving.co.uk/elliesyear

Sarah has started a blog. In this first entry she introduces the two of them...

''Louise was the first one of us to get the ball rolling. She had heard about Heather because of all the fund raising she was doing and through a friend learned about Ellie’s song which, encouraged her to find out more about Ellie.

 

Inspired by Ellie and a friend who had died from a brain tumour two years before, she wanted to do something positive to raise awareness and money so, decided to run the London Marathon in Ellie’s name ( as you do!)

 

A girlie night in at our friend’s house brought us two fitness freaks together and before I knew what was happening, Louise had my name down for the marathon and we were out training in the rain & wind – thanks, Louise.

 

Unfortunately just as we’d got up to about ten miles, Louise sustained ligament damage, tendonitis and a sprained ankle but being the trooper (stubborn sod) she is kept on running. It wasn’t until she had to stop running in agony that she finally listened to sense and agreed to rest it.

 

But, we’re not the type of women who are happy to sit around for 6 weeks & wait for Louise’s ankle to get better so we decided to bike until she was well enough to run again.

 

Not content with running the marathon, it inspired Louise to want to cycle 40miles for Ellie’s fund and I (in a moment of genius/madness) decided to make it a hundred miles. Not willing to be outdone by me, she suggested we cycle to London. As a compromise we agreed to bike across the country to Blackpool in a coast to coast cyclathon.

 

So, this is where we are now, 12 months away from the 2012 marathon and at the start of planning our cyclathon. We’d really like to thank Heather for all her support and for setting up our fundraising site.

 

St George’s Day marks the start of Ellie’s Year: a series of events and feats of athletic endurance that will hopefully see us raise our target of £12 000 by the end of our marathon.

 

This is where you come in. Please help us smash our target by: sponsoring us; getting involved in our charity events and telling everyone what we are doing and why.

 

Ellie is our inspiration. She made such a positive impact at such a young age and was determined to help others and make a difference. Help us do the same too......''

 

Scarborough Evening News article 19/4/11

April 20, 2011
Published on Tuesday 19 April 2011 11:49

HUNDREDS of pounds have been raised by school pupils in Derby for Scarborough charity Ellie’s Fund.

The money was donated by Scarborough girl Eleanor Sharples, who studies at Repton School.

Each year the school raises funds before dividing it among charities put forward by the pupils.

Eleanor, 16, asked if part of the money could be given to Ellie’s Fund which was set up in memory of 14-year-old Ellie Othick-Bowmaker, who died last year after battling two brain tumours.

As a result the charity, which was set up to raise awareness of brain cancer, received £500 from the school.

Eleanor said: “Every year from September to December we raise a lot of money, then each pupil is given the opportunity to put forward a charity. Quite a lot goes to national charities, and charities which have directed affected “

“This year we raised £26,000 in total and I put forward Ellie’s Fund, which in the end got £500.

“Ellie was a special girl, and it is nice that I am able to represent her charity at my school all the way in Derby.”

 

About Me


Heather Othick Proud mum of 3; I brought Phil and Ellie up alone after their Dad and I spilt up in 1996. I later met Jason and he moved in with the 3 of us in 2002. We've been married since 2004 and have a daughter together. I worked for 17 years in a bank until I left to have my youngest. She was born with a cleft lip and palate and research into helping her communicate led me to buying a franchise for TinyTalk, baby sign language classes. Ellie was a big part of that - coming to classes when she was on chemo; she loved helping out. I pressed pause on the business in August 2008 to become Ellie's full time carer. Whilst I was at the bank I was the regional charity fund raising organiser - so when Ellie asked to raise funds to 'give something back' I had an idea where to start. She had a natural flair for it - and together we have helped to raise over £25 000, starting in June 2007 when local people raised £4000 in one night for us to have a family holiday. I am extremely proud of all my children, and my family; how they all handled Ellie's illness. And very proud to be Jason's wife. Through all of this he has been my rock.

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